The UK Infantile Spasms Trust has become the latest charity to benefit from an equipment supplier’s fundraising drive.
Brook Food is marking its 25th anniversary by making a £25 donation to charity for every order of £1,000 or more placed with the business during 2019. A different charity is to benefit each month, with previous recipients including St Margaret’s Hospice and the RNLI station at Minehead.
June’s chosen charity was the UK Infantile Spasms Trust (UKIST), which provides support to families with children affected by the rare seizure disorder infantile spasms, also known as West Syndrome.
UKIST was set up by a group of parents including Samia Sanders, who has worked with her husband Steve at Brook for a number of years. Their daughter Jorgie was diagnosed with the condition in 2012.
Brook Food group marketing director Ann Wells last month presented Samia and Jenny Rawling from UKIST with a cheque for £1,700.
“Our colleagues Steve and Samia have been dedicated to raising awareness of Infantile spasms since their daughter was diagnosed, and to support a cause that otherwise receives little understanding or recognition, but can be a potentially life-threatening illness, is an honour,” she said.
Sanders thanked Brook for its donation and its support.
“From the day of Jorgie’s diagnosis, I have had so much support from work – from time off for hospital visits and appointments, holding fundraising days, to time off to set up the charity and attend epilepsy workshops,” she added.
“The support has been huge, so to get a cheque for the charity, which will help families that are in the same position we were in, is amazing.”
Rawling explained the charity was now in a position to offer small grants for equipment or therapy to member families, financial contributions towards epilepsy research and also training sessions for primary healthcare staff.
So far this year, Brook has donated £10,000 to charities and hopes to have donated £20,000 by the end of the year.